RareCAP is an online program for the creation and curation of protocols to manage care for patients with rare diseases. The platform is designed for both specific author input and clinician/professional community input. In your pivotal role as Curator, you will exercise editorial control of the protocols housed in RareCAP and solicit authors to create and own new ones. The Curator initially will also oversee the clinician community engagement and comments on these protocols and monitor for suggestions that should be incorporated and censure comments/behaviors not conducive to constructive discussions. The Curator will have the authority to approve suggestions from potential authors for new rare disease content and ensure that existing content is regularly updated. The Curator will be the point of contact with the platform owner, the clinician community, and disease owners and collaborators to handle problems and suggestions to improve the program.
About the Department:
The Vanderbilt Institute for Clinical & Translational Research (VICTR) is Vanderbilt's virtual home for clinical and translational research. Supported by Vanderbilt University Medical Center's Office of Research and the NIH-sponsored Clinical and Translational Service Award (CTSA), the mission of the institute is to transform the way ideas and research discoveries make their way from origin to patient care. VICTR functions to help researchers and clinicians do their jobs better by providing tools and support to improve the quality of research, publications, grant writing, and training for future doctors and researchers. For more information, please visit https://victr.vumc.org/.
View how Vanderbilt Health employees celebrate the difference they make every day:
Discover Vanderbilt University Medical Center:
Located in Nashville, Tennessee, and operating at a global crossroads of teaching, discovery and patient care, VUMC is a community of individuals who come to work each day with the simple aim of changing the world. It is a place where your expertise will be valued, your knowledge expanded and your abilities challenged. It is a place where your diversity -- of culture, thinking, learning and leading -- is sought and celebrated. It is a place where employees know they are part of something that is bigger than themselves, take exceptional pride in their work and never settle for what was good enough yesterday. Vanderbilt's mission is to advance health and wellness through preeminent programs in patient care, education, and research.
VUMC Recent Accomplishments
Because we are committed to providing the best in patient care, education and research, we are proud of our recent accomplishments:
* US News & World Report: #1 Adult Hospital in Tennessee and metropolitan Nashville, named to the Best Hospitals Honor Roll of the top 20 adult hospitals, 10 nationally ranked adult specialty programs, with 3 specialties rated in the top 10 nationally, Monroe Carell Jr. Children's Hospital at Vanderbilt named as one of the Best Children's Hospital in the nation, with 10 out of 10 pediatric specialties nationally ranked.
* Healthcare's Most Wired: Among the nation's 100 "most-wired" hospitals and health systems for its efforts in innovative medical technology.
* Becker's Hospital Review: named as one of the "100 Great Hospitals in America", in the roster of 100 Hospitals and Health Systems with Great Oncology Programs and to its list of the 100 Hospitals with Great Heart Programs.
* The Leapfrog Group: One of only 10 children's hospitals in the to be named at Leapfrog Top Hospital.
* American Association for the Advancement of Science: The School of Medicine has 112 elected fellows
* Magnet Recognition Program: Received our third consecutive Magnet designations.
* National Academy of Medicine: 22 members, elected by their peers in recognition of outstanding achievement
* Human Rights Campaign Healthcare Equality Index: 6th year in a row that Vanderbilt University Medical Center was a Leader in LGBTQ Healthcare Equality.
KEY RESPONSIBILIES
Prepares and/or edits written technical reports, protocols, peer-reviewed manuscripts, abstracts, and presentations.
Prepares and/or edits study protocols, statistical analysis or other project implementation plans in collaboration with a research team or other collaborators to address research questions and objectives.
Identifies and collects appropriate data, including from literature, databases, interviews and/or surveys using scientifically valid methods.
Provides support for a broad portfolio of sophisticated healthcare research projects in a project team structure. May supervise research staff.
May conduct remote web-based interviews and moderates focus groups with a spectrum of healthcare stakeholders, including patients, caregivers, healthcare professionals, academic experts, and policymakers.
Synthesizes, interprets, and communicates complex quantitative and qualitative results to internal and external audiences.
Manages additional team members as the program grows.
Serves as a technical product informant for the RareCAP technical platform.
TECHNICAL CAPABILITIES
Technical proficiency with common business software (e.g., Word, Excel, PowerPoint)
Familiarity with common biomedical research information retrieval tools (e.g., PubMed, web of science)
EVIDENCE SYNTHESIS (ADVANCED)
Conduct comprehensive literature searches, identify appropriate information, and synthesize evidence from biomedical literature and other resources to support projects and teams. Support leadership by consulting on a range of research, grant, patient care, and business activity related information requests. Triage evidence requests based on expertise, providing formative feedback on approach, deliverables, and timelines. Synthesize relevant evidence into formal concept documents and presentations. Develop and refine hypotheses related to novel findings.
COMMUNICATION OF RESULTS (ADVANCED)
Analyze, distill, and disseminate project results in ways that are successful in spreading findings and approaches for the purpose of benefiting institutions, researchers, trainees, and patients beyond VUMC. Disseminate evidence results with teams. Collaborate on manuscripts to disseminate findings and opinions resulting from a body of work. Oversee and edit manuscripts to disseminate key programs and projects more broadly via peer-reviewed literature. Actively contribute to discussions with collaborators regarding findings and ideas for follow-up work.
PROJECT MANAGEMENT (ADVANCED)
Guide evidence-based activities in identifying potential collaborators. Communicate with internal and external study collaborators. Establish project timelines and dependencies and track internal and external team activities. Regularly monitor the literature, team interests and findings, and other evidence sources and refine course as needed.
QUALITY ASSURANCE (ADVANCED)
Design and develop audit measures based on general SOPs and prepare checklists for inspections and compliance monitoring.
Vanderbilt University Medical Center is home to Vanderbilt University Hospital, The Monroe Carell Jr. Children’s Hospital at Vanderbilt, the Vanderbilt Psychiatric Hospital and the Vanderbilt Stallworth Rehabilitation Hospital. These hospitals experienced more than 61,000 inpatient admissions during fiscal year 2015. Vanderbilt’s adult and pediatric clinics treated nearly 2 million patients during this same period. Vanderbilt University Hospital and the Monroe Carell Jr. Children’s Hospital at Vanderbilt are recognized again this year by U.S. News & World Report’s Best Hospitals as among the nation’s best with 18 nationally ranked specialties. Vanderbilt University Medical Center is world renowned because of the innovation, work ethic and collegiality of its employees. From our health care advances to our compassionate care, Vanderbilt owes its accomplishments and reputation to staff and faculty who bring skill and drive and innovation to the medical center day after day. World-leading academic departments and comprehensive centers of excellence pursue scientific discoveries and transformational educational and clinical advances across the entire spectrum of health and disease.As t...he largest employer in middle Tennessee, we welcome those who are interested in ongoing development in a caring, culturally sensitive and professional atmosphere. Most of us spend so much of our lives at work, we want to be part of maintaining a workplace in which people support one another and encourage reaching for excellence. Many high-achieving employees stay at Vanderbilt because of the professional growth they experience and because of their appreciation of Vanderbilt’s benefits, public events and discussions, athletic opportunities, beautiful setting and, above all, sense of community and purpose.Vanderbilt and its employees share a set of mutual expectations that have been created with productivity, legality, fairness and safety always in mind. We believe that our investment in training and compensating employees multiplies in value when we enable individuals to deliver their best performance for the benefit of us all.
